Welcome To My Fundraising Page For LiveLikeLou!

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Allie's Story... I’ve been living with a rare form of ALS for more than 5 1/2 years. I've been extremely fortunate that the disease has stayed in my arms, but the same cannot be said for most people with ALS. We also don't know if or when it will spread to the rest of my body. 

Our Hope... Our family wants to do everything in our power to put an end to this tragic disease.  I want to see my son graduate high school, and help give hope to other ALS and the quality of life they deserve!  It starts with help from people like you! 

Our Goal... We have set a family goal to raise $10,000 by November 1, 2021 for a major ALS Research campaign at Vanderbilt University Medical Center. 

Please Join Us... 

  • Please attend a fundraising event on my birthday to kick off the start of our campaign, Monday, August 30th, 2021 from 6:00 - 7:30 at Center 615. RSVP at this link. 
  • Please donate by clicking on the SUPPORT ME button at the top of this page. To donate by mail, send your check to The LiveLikeLou Foundation, 1805 Woodland Street, Nashville, TN 37206

The Facts...

Amyotrophic Lateral Sclerosis (ALS) or Lou Gehrig’s Disease is a progressive nervous system disease that affects nerve cells in the brain and spinal cord, causing loss of muscle control. When someone is diagnosed with ALS, they’re given an average of 2 – 4 years to live. They lose their ability to walk, talk, feed themselves and swallow. Ultimately, their respiratory muscles will deteriorate, ending their ability to breathe.

Where Will My Funds Go?

Good question! The funds I raise will benefit the It’s a Whole New Ballgame for ALS Research campaign, benefitting LiveLikeLou's partnership with Vanderbilt University Medical Center (VUMC) in Nashville, Tennessee, to establish new, pre-clinical, and innovative ALS science at this top-tier research institution. 

What Impact Will We Make?

Your donations will help fund Middle Tennessee's largest investment in ALS discovery, and build a community of support to sustain new science for this disease that needs more ‘at bats’ to find a treatment or a cure. The Phase One goal is to raise $3.5 million and recruit a translational scientist (MD/PhD, MD or PhD) to serve as VUMC’s new Director of ALS Research, charged with leading pre-clinical, novel science investigations, building a diverse, dynamic, and productive research laboratory, and supporting their premier ALS clinical practice.

Please join me and help Leave ALS Better Than We Found It!


Allie Schmidt