ALS research

ALS
resarch

Our Programs

The Live Like Lou Foundation focuses on developing partnerships to facilitate learning amongst ALS scientists and supporting innovative ALS research to find treatments or a cure.

become a Live Like Lou

Emerging ALS Investigator

learn more

live like lou

ALS research grants

Career Development Award

This financial grant has an annual payout of up to $100,000 for up to two years. It is awarded to a junior ALS investigator (or team led by a junior ALS investigator) from an R1 institution (or its equivalent) focused on pre-clinical ALS research and featuring collaboration from distinct scientific disciplines with the goal of acquiring data needed for an NIH-level R01 grant proposal.

Previous recipientS
  • 2019—Dr. Veronique Belzil, Mayo Clinic of Florida; and Dr. Manolis Kellis, MIT

  • 2020—Dr. Aaron Haeusler, Thomas Jefferson University

  • 2021—Dr. Stephanie Moon, University of Michigan

  • 2023—Dr. Devesh Pant, Emory University

    APPLICATION OPENS August 2025

    Postdoctoral Fellowship

    This program is intended to expand the number of investigators conducting innovative neurodegenerative disease research to find treatments or cures for ALS. This grant supports emerging scientists with interest in ALS who are in the early stages of postdoctoral training at an R1-level institutional research laboratory or research environment. The fellowship covers direct costs of up to $75,000 per year for up to two years. Eligible applicants should have successfully completed no more than thirty-six months of postdoctoral research training at the time the award begins.

    Previous recipientS
    • 2022—Dr. Daryl Fields, University of Pittsburgh

    • 2023—Dr. Alexander Cammack, University College London; and Dr. Yifu Han, University of Southern California

    • 2024—Dr. Gregory Mohl, University of California at San Francisco; and Dr. Carlo Scialo, University of Zurich

      APPLICATION OPENS May 2025

      Graduate Fellowship

      This Fellowship is intended to attract and encourage new researchers in PhD graduate programs conducting innovative neurodegenerative disease research aimed at finding treatments or cures for ALS. The Fellowship awards up to two graduate students enrolled in an academic institution or equivalent research environment up to $50,000 annually for up to two years to be awarded beginning April 2025.

      Previous recipientS
      • Apply to be the first recipient!

        APPLICATIONs due March 14, 2025
        Join Us for the

        Emerging ALS Investigator Collaborative Learning Series

        Sponsor or attend Live Like Lou’s scientific research programs.

        learn more
        Working in partnership with the Live Like Lou Scientific Advisory Board, the organization selects and partners with leading ALS scientists to nominate host institutions, presenters, and the invitation list for hybrid and in-person research learning events.

        Together we provide opportunities for collaboration, research partnerships, unique instruction, and grant opportunities not otherwise available to emerging ALS investigators.

        partner institutions
        • University of Pittsburgh, 2018

        • Barrow Neurological Institute, 2020-2022

        • University of Michigan, 2023-2024

          For awards funded by the Live Like Lou Foundation, our grants to institutions support our research priorities. As such, none of our money may be used for indirect costs, facilities, and/or administrative costs. All funds awarded by the Live Like Lou Foundation are expected to be used for research in this field (after costs, if applicable).

        HYBRID SPEAKERS SERIES

        Live Like Lou launched virtual programming in the summer of 2020.

        With the addition of virtual programming, more collaborative discussions and presentations have resulted. Live Like Lou now hosts at least two hybrid speakers series events each year in addition to its biennial in-person event.

        Biennial In-Person SYMPOSIUM

        In 2018, Live Like Lou began bringing together emerging ALS investigators every other year to collaborate, share research, discuss ideas, and network with one another at a two-day symposium.

        Live Like Lou

        ALS Research Partners

        The pace of change in ALS research and our hope for future treatments and cures for ALS increase when communities come together. Live Like Lou is proud to have funded research at two world-class institutions to date:

        The University of Pittsburgh

        Funded during Live Like Lou’s grassroots days in Pittsburgh, Pennsylvania, Neil and Suzanne Alexander were devoted to advancing ALS research upon Neil’s diagnosis with Lou Gehrig’s disease. With the funds raised from 2011–15, the Live Like Lou Center for ALS Research at the University of Pittsburgh Brain Institute was created. Its mission is to unlock the mysteries of normal and abnormal brain function and translate discoveries into new approaches for overcoming brain disorders. Since its inception, the brain institute has grown to include two primary investigators and leading laboratories of more than a dozen scientists. They have three patents pending and a spinoff therapeutics testing lab that went public in July 2022.

        Vanderbilt University Medical Center (VUMC)

        Live Like Lou teamed up with VUMC for new ALS research in Middle Tennessee. The It’s a Whole New Ballgame for ALS Research campaign has raised more than $5 million to fund new, pre-clinical, and innovative ALS science at this top-tier research institution. Learn more about the latest campaign news and fundraising success.

        Live Like Lou

        Scientific Advisory Board

        Live Like Lou develops its research grants, programming for emerging ALS investigators, and strategy for research investments based upon the recommendations of a volunteer Scientific Advisory Board comprised of experts in the field.

        Scientific advisory board

        Yuna Ayala, PhD
        Associate Professor and Vice Chair, Biochemistry & Molecular Biology,
        Saint Louis University School of Medicine

        Sami Barmada, MD, PhD
        Associate Professor of Neurology, University of Michigan, Ann Arbor

        Veronique Belzil, PhD, MS
        Director, Vanderbilt ALS Research Center and Associate Professor, Department of Neurology




        Lindsey Hayes, MD, PhD
        Associate Professor of Neurology, Johns Hopkins University

        Evangelos Kiskinis, PhD
        ‍Associate Professor of Neurology and Neuroscience, Northwestern University; Live Like Lou Foundation Scientific Director

        Live Like Lou newsletter

        In the Dugout