However, Kylan’s connection to ALS runs much deeper, as her mom, Sandy Morris, was diagnosed with ALS in January of 2018. Sandy quickly became a force in ‘ALS Land’ advocating for people living with ALS and dedicating her limited time to improving conditions for those living with the disease. Sandy’s particular passion for implementing and upholding a patient-centric approach in all areas of ALS, especially for clinical trials, led her and a team of advocates to draft the Morris ALS Principles. After full-time caregiving and advocating alongside Sandy for all four and a half years of her disease progression, Kylan continues to carry on her legacy in every possible way. She co-led a team of advocates to develop the ALS Clinic Advisor, a tool for people living with ALS and their caregivers to efficiently navigate services, trials, and resources throughout their ALS care journey.
Kylan ran the 2022 NYC Marathon in her mom’s memory two months after her passing while raising over $20,000 for Project ALS in the process.
Kylan is a graduate of Cal Poly, San Luis Obispo with a bachelor’s degree in communications and is a member of Alpha Chi Omega. She lives in the Bay Area with roots in the Lake Tahoe community in Northern California.
Kylan has served Live Like Lou on the Iron Horse Scholarship Selection Committee since early 2023 and joined the board as a trustee in 2024. She chairs Live Like Lou’s ALS Family Support Committee.
