Live Like Lou Newsletter | In the Dugout | January 2024

1.31.2024
ALS Awareness
ALS Community

Here’s an inside look at the incredible work of the Live Like Lou Foundation over the past quarter. Enjoy updates from our volunteers and researchers, and check out how our donors help us leave ALS better than we found it in honor of our namesake and baseball Hall of Famer Lou Gehrig and the more than 30,000 people living with Lou Gehrig’s disease across North America.

The Lou

The Lou, our second annual specialty workout to benefit the Live Like Lou Foundation, was held last weekend. We are blown away by the incredible passion and commitment from gyms across North America who raised $75,619.61!

With hundreds of participants from 73 gyms and more than 1,000 donors, the funds raised fuel our programs this year and help leave ALS better than we found it. Read more about The Lou, year two!

Scientific Director

As part of our commitment to invest in people, places, and discoveries that will lead to tomorrow’s trials, treatments, and cures for ALS, we are proud to announce that Evangelos Kiskinis, PhD, from Northwestern University will serve as the Live Like Lou Foundation’s Scientific Director.

With support from our esteemed Scientific Research Committee and Board of Trustees, the Scientific Director will drive the strategic direction of Live Like Lou’s ALS research program. Read more about Dr. Kiskinis.  

Lou + Football

Did you know? Here's a little Lou Gehrig trivia fact for you. We all know Gehrig was a phenom with a bat and at first base for the Yankees, but did you know his first love was football? He was recruited to Columbia University to play fullback, halfback, and defensive tackle for the Columbia Lions. Of course, he played a little baseball, too! 

New Trustees

We're thrilled to introduce the newest additions to the Live Like Lou Board of Trustees! These individuals bring a wealth of expertise, passion, and dedication to our vision to leave ALS better than we found it. Join us in welcoming Brian Dunn, David Haire, Kylan Morris, and Jack Silva as Trustees.

Iron Horse Scholarships

Applications are now open for our 2024 Iron Horse Scholarships. Offering financial support for post-secondary education for dependents in ALS families, this program honors the resilience and strength demonstrated by these families in the face of the disease, inspired by our hero, Lou Gehrig.

The renewable, four-year Iron Horse Scholarship provides up to $2,130 per semester for eight semesters. The significance of $2,130 pays homage to Lou Gehrig's 2,130 consecutive games played record, symbolizing the determination and courage he embodied. Each year, four full scholarship recipients are selected, with the scholarship valued at $17,040 over four years. Additional one-time Onward Awards are offered for finalists and range from $500-$2,130 each. The deadline for interest applications is February 21, 2024. 

Sara Bennett

Sara Bennett is a force. She had a career as a social studies teacher, club advisor, and swim coach, all while also running a small business helping people get organized. She's a mom of two young boys, wife to Rusty, and dog mom to Grif.

“I thought of myself as a therapist, a cleaning lady, and a coach in a cocktail shaker,” she shared. As an educator, entrepreneur, business owner, dedicated mom, wife, sister, and daughter, she has now taken on the role of an ALS warrior since her diagnosis in March 2023, almost exactly one year after her symptoms began. Since her diagnosis, she's retired from teaching and is dedicated to education about adaptive tools for everyday living. Read more about Sara's inspiring story!

Beanie Giveaway!

Don’t miss your chance to win a Live Like Lou beanie! Whether you're counting down the days until summer or enjoying the snow and winter weather, follow Live Like Lou on social media and comment on our post to be entered to win. One winner will be drawn from each platform at the end of the day on Friday, February 2:

LLL Tagline

As we wrap up this quarter’s In the Dugout, we reflect on an incredible few months of progress, activity, and devotion for Live Like Lou. Here are just a few of the many additional highlights of what we’ve been up to:

  • Valentine's Day is the perfect time to send something special to those who love (or yourself!). Send a Live Like Lou e-card or flowers and Live Like Lou benefits! As one of the first nonprofits to partner with Crayola Flowers, ten percent of all purchases through our link are donated to Live Like Lou.
  • Check out our new peer-to-peer fundraising platform! Any special occasion can become a fundraiser to benefit Live Like Lou and generate more awareness for ALS. From birthdays and anniversaries to hosting a fun event, don't hesitate to contact us if we can answer any questions or help get you started.

We’ll be back in touch in a few months with even more good news. Thank you for your interest in the Live Like Lou Foundation and our work to leave ALS better than we found it!

Live Like Lou newsletter

In the Dugout